Well, its been a while since I posted... I have had a lot going on... My son I talk about in my previous post with the rare disease is not doing well at all.. Not only has this Wegeners taken its toll on him, he is now Pre Stage 5 Chronic Renal Failure (also known as End Stage). We just found out he goes this week to have a av fistuila placed in his arm for the purpose of doing dialysis for the rest of his life or until he is able to get a kidney.. The Wegeners has made the kidney transplant out of reach right now, his immune system is still attacking his own organs..
At this point, the doctors cant even say for certain how long Justin will survive and that is hard to swallow.. He is so angry right now, who wouldnt be under the circumstances... But all of his anger he puts on me and towards me, which makes all of this even harder.
But I guess that comes along with being a single mom.... It hurts none the less...
There are so many things I wish for him, things he has never done or been able to do.. Like going to a concert, he has never went to one or going to one of his favorite teams basketball or football games. We have never been on a family vaccation.. My kids did without alot of the "extras" in life, but they never complained or made me feel bad because I wasnt able to provide them with that...
Maybe if anyone out there has some tickets laying around that they arent going to put to use you could keep Justin in mind. He loves the Rap/Hip Hop and Basketball is his passion.. We live and hour away from Dallas Tx and an hour from Tyler Tx... Thank you for any help you may be able to provide
